Friday, 16 March 2018

Baby Update 2, March 15-16 and some more pre-history.



Thank you everyone for your kind words of support and for your prayers. First I was shocked that apparently, as someone explained me, if a non-public post gets too many comments, Facebook starts showing it in timeline of many others who were limited from it… but now that I am receiving so much encouragement my faith index went up even more, I feel your prayers and Ivanna does! And I am receiving a lot of private messages from people who share similar stories that happened to them and this really is so great to hear, I needed to hear it!

So yesterday the monitoring began. Ivanna Marie is stable, her “well-being” number always comes back at 6/8 or 8/8 (tone, amount of movement, amount of lungs muscle movements and amount of necessary amniotic fluid) and the heart rate monitoring always comes back as very healthy. And she continues kicking, I let her listen to healing prayers often (she loves it and often starts dancing and kicking when she hears it) and I have a lot of peace about this situation now.

My only major difficulty is sleep, I can’t sleep more than 4 hours a day and I was probably getting migraines because of it. But since I took that first steroid shot, the next day all of a sudden I had so much energy. Yesterday I had a second one and today again I was full of energy and no migraines! I hope that migraines are done though since I am not feeling stressed anymore. Not even fearful.

Another thing is I can’t eat between 11 pm and 11 am since I have to wait for all the morning tests to be done so that the doctors clear me from urgent C-section that day. If any of the morning test (bloodwork, ultrasound of placenta flow and baby well-being, half an hour heart-rate monitoring) comes back worse than what it is now, then they will put me into c-section right away, so this means it’s better not to eat until the doctors clear me. It’s hard since I am usually starving by 5 am lol. But these are all little things… and my appetite is good throughout the day.

Some of you were asking me what causes compromised placenta or IUGR (intrauterine growth restriction, small babies). There can be many causes and my case is a rare one. My placenta wasn’t formed properly, the condition is called Velamentous Cord Insertion. This means the umbilical cord does not attach to the center of placenta as it should, but instead it splits into three blood vessels and attaches to some outer layer of placenta. This way placenta simply can’t function to its full capacity. Depending on the severity of IUGR women could carry the baby close to full term as long as Doppler numbers don’t drop.. but mine dropped on the 23 week… now because the baby still managed to gain weight doctors are becoming more encouraging to me. Before they were only trying to convince me that baby has not much chances… but this is not the first time it happened during these five months.

Scary news in October

This is about October, when I was only 5 weeks pregnant. The first time I received the bad news it sounded like this “Maria, you have a serious condition called corneal pregnancy. This is the most dangerous form of ectopic pregnancy, meaning that fetal sac (which is not an embryo yet) is located on the corner of tubes and uterus and there are so many blood vessels there, that if it ruptures, the surgery will be very complicated and you might lose both the tube and a portion or the whole uterus. So you should take the chemo pill for the abortion and your next pregnancy will be better”.  Ultrasound took them awhile since they were confused and couldn’t figure out how come the fetal sac is in such a strange place… had a few doctors come by and look at the images while I was laying there and their faces were very shocked and perplexed.

I asked them if there is a chance they could be wrong since at this stage they did mention that ultrasounds can still be unclear. They said they are not 100% sure but it definitely looks like the fetal sack is not quite inside the uterus as it should be.

I asked them what other options I have except for taking the pill. The answer was “well, you are bleeding so much, you will probably miscarry by morning. So we can keep you on IV for the night at the hospital, you can’t et anything in case we have to operate and tomorrow we will repeat the ultrasound”.

So guess what happened next morning… The whole night I was praying, I had to tell my parents about my pregnancy and they were praying too and they told me to wait and see, in the morning I will find out that the doctors are wrong. I also read about one girl who had a similar issue and her doctor jokingly said “sleep on the right side” implying that what what if fetus climbs down since it was on the left side high up. And funny enough it helped her even though at this stage implantation already happened and fetus doesn’t just climb down anymore, but who knows!

So I did that! Me and Andrey were talking to out future baby and telling him/her to climb down, we had a lot of faith. At the morning ultrasound the radiologist’s face was funny again and she kept looking at the same picture so many times. At the end of the ultrasound she said, “Congratulations, pregnancy is intrauterine!” with a smile on her face. I started to sob from happiness. Gynecologyst said that I will still need a lot of follow up to see which way the placenta is growing since it was still too high and to close to the tubes and if it grows too close to the tubes, it could be a problem.

But about further adventures, there were more of them of different kind, later. I hope this helps some of you girls to know that doctors can say a lot of scary things but tests can still be inconclusive, and they can be wrong, or sometimes they just scare you with the worst possible outcome so that later you don’t tell them “how come you did not warn me serious enough about this?” But you should listen to your inner feeling and don’t make any rush decisions… I am hearing more and more of these stories later and I am sure a lot of you had something like that happen. I understand the doctor’s logic now but it was hard in the beginning.

Wednesday, 14 March 2018

My baby's hospital udpates




This blog is about the slippery end of the rope journey that I am on for the past 5 months, the journey of being with my precious daughter Ivanna Marie Nikitina, who is resilient, who is a fighter, who dances and practices soccer with her strong kicks inside of me every day despite the hopeless prognosis of the doctors. I am so proud of her and we will keep fighting for life. And also for those of you who are writing your words of support for me and asking me how I am doing, it’s becoming difficult to answer everyone, so I will post the updates here and you can also post your prayers and words of encouragement here. We will fight with Ivanna as long as God permits us.

My blood pressure is high, I have daily migraines, but doctors take good care of me at the hospital and I will be fine. Also I can’t thank God enough for my team who are working so hard day till night to make sure all the clients are taken care of and handling things so well. I support them as much as I can and it even helps to be distracted with work at times.

I haven’t written blogs for awhile, but I think this will really help my mind to unload and I hope to share the spiritual journey that I have been on for the past few months as well. It’s been the hardest time of my life so far and the time when God has shown himself so much to me. I could never do this on my own. He has done so many miracles so far. “Beauty and pain intertwine into a beautiful dance called life”… these are the words from some of my old poems, which I used to post in the blog.

Let me begin with the good news. Today, March 14, marks the day of a major miracle. On March 9, doctors straight up told me that with the blood supply that my placenta is getting (almost none according to Doppler readings), it’s impossible for baby to gain the minimum 500 g that they require for NICU to accept me for delivery. And they straight up told me that I should give up and prepare myself for next pregnancy instead. They told me that baby can die any day and that it’s in my best interest to end the pregnancy. I can’t even describe how upset I was, but not only about the situation, but about how doctors are not willing to fight at all. Baby weight was 330 g on March 1 at 22 weeks gestation. Babies are supposed to gain about 120+ grams in two weeks and weight measurements has to be done every two weeks to avoid margin of error.

So today doctors walked in smiling and told me that baby gained about 100g in 13 days and this is an incredibly good number for someone with my condition, unbelievable number. She is now 434 g and this is an estimation, doctor said it could even be 500g in reality, they can’t say for sure. I was believing for a weight close to 450 g and we got it.

I talked to probably 15 doctors today, from high-risk team, from my OB team, from NICU. They all wanted to make sure I understand what kind of “scary” zone I am getting into. I will explain in a bit. But honestly, even though I wasn’t crying or freaking out while talking to them, these conversations exhausted me so much, that at the end of the day migraine again was so bad and the nurse said that my face looks greenish and swollen.

But the point is this: doctors are on my side now, I convinced them all to fight for my baby, and the atmosphere changed. Now it is so much easier to breathe for me. They still say that it’s one in a million chance for baby to get to a good development stage and be born normal. Once the main NICU doctor was leaving the room she told me that she wants me to surprise her because I told her I want to fight for Ivanna to be that one in a million. I understand that it’s life, I am ready for everything, so many kids are born not preemies and they still have diseases, disabilities, and parents don’t give up fighting for them, loving them, getting the best treatments possible for them. My parents had to give up a lot, borrow a lot of money to take my youngest sister to Germany for very complex heart surgery with tiny percent of survival rate, yet God did his miracles, He was faithful to me and my family so many time. So of course we have to stand in faith this time.

NICU doctor told me that despite the statistics I read online about a 24-25 week micro-preemie with 500 g weight, my odds are worse because my baby is IUGR, this means she has been behind in size and getting less blood/nutrition and it’s unknown whether she developed the organs properly for a 24 weeker.

So what will happen now? Today they gave me a super painful steroids shot, this is to get the baby’s lungs the best chance of development and starting tomorrow they are starting close monitoring. Every morning they will do an ultrasound measurement of blood flow to placenta and baby and this means I have to be fasting in the morning since C-section can happen the moment they see any further deterioration. It’s a miracle that this blood has been sustaining my baby, some numbers in the blood flow are intermittent to absent and others are the lowest 5%. But if it gets any worse (called reverse distolic flow), then they will do emergency c-section right away. And the second thing is they will do half an hour heart rate measurements a few times a day to detect any problems there early enough for an emergency c-section.

This is good enough for the first post, I will post more updates soon!

Wednesday, 4 May 2016

Don’t live up to anyone’s expectation
Don’t play by someone else’s rules
Be yourself and follow your heart
So what, let them call you “a punk”

Don’t grow up, always be a child
Be happy with who you are inside
Do not try to follow the crowds
It does not matter if they laugh

In the end this is who you are
In the end a few will be by your side
And the rest will not understand
And try to change you but don’t let them

This is what I used to tell myself
And then I became an adult
The reality of money and career
Blinded me and I forgot all of that

The most unexpected events
Sometimes hit you like a hammer on the head
And you wake to the truth
You wake up from a long boring dream

And the life is back on track
You live and smile and laugh
Yet you get the serious things done
Use your education and brains

And somehow it is enough

Friday, 11 March 2016

*****

Погружение, удаление.
От себя, в себе.
Забывание расстояния
В километрах ветра.

Углубление, отражение,
Словно ветра дыхание.
Нет ни грани, ни дна,
Как северное сияние.

Прижми руку в груди
Сердце стонет от боли
Ты согрей, его обними.
В этом и есть твоя доля.

Облаков парение,
Цветов увядание.
Обновление, процветание,

В вечном счастье, забвении...

Sunday, 6 March 2016

Measure me, take me apart,
Wreck my soul and bind my heart
Forever stay in this embrace
In this mysterious abandoned place

Be alone but yet be mine
Share your thoughts and make me shine
Only for a moment
Or for a whole night

Get a glimpse into my galaxy
But then expect a fall
A star explodes and burns it all
Don’t feel alone

Feel our hearts colliding, exposing,
Unwrapping, composing…
Like many universes share one world
Yet so distant and it is so cold

I can’t feel anything anymore
The scars all of a sudden hurt
And the memories bubble to surface
I can’t run away from my birthplace

You are my counterpart
Will not be able to tear you out
No matter how much strength

It takes, it will not be enough